Tag Archive | diabetes

Little People Can Be Some of the Biggest Inspirations– The Very Inspiring Blogger Award.

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All in one day Mama told me that I got the Lovely Blog Award and the Very Inspiring Blogger Award. That is a lot to take in for me—because I don’t really understand recognition. Mama said that being recognized means that someone is letting you know that you are helping them out or doing a good job. I don’t do much—I just smile and laugh—and Mama and Daddy seem to melt. I guess that I am pretty powerful after all if I can do that.

Mama said that this award is pretty special because it means that you are an inspiration. That is a big word, so she had to explain it to me. She told me that it means that you encourage others and that you are a good example for them. I do think that big people should live more like us “little people,” so hopefully I help others to do that, I am already working on doing good in the world.

Melody of “Life’s Daily Dose” nominated me for this award. Her blog is wonderful and we nominated her for a different award today because Mama loves to read her work. Please check her site out at http://blog.lifesdailydose.com.
Here are the “rules.” I am generally a rebel (Mama says that is a word for rule breaker), but I know that sometimes following what you should do is important.

– Display the above logo on your blog
– Provide the link to the person who nominated your blog
– Nominate 15 bloggers who have inspired you
– Inform those bloggers of their nomination and placing links to their blogs

http://richardsfoodforthought.com

http://lucilleinthesky.com

http://theperfectd.com

http://momsasaurus.wordpress.com

http://youaintspecial.wordpress.com

http://katcarpita.wordpress.com

http://14weeksworthofsocks.com

http://killingketones.wordpress.com

http://type1philly.com

http://farawaymeblog.wordpress.com

http://aregularindiangirl.wordpress.com

http://youthofanation.com

http://pukahworks.wordpress.com

http://cozyrosysweet.com

http://confessionsofateenagerunaway.wordpress.com

Mama says that there are a lot of diabetic blogs on the list this time for my big sister Addie—because it is always good to have support for T1D. We also love to travel, so we picked a few travel blogs, too, and we love beautiful words and art, so all of the blogs include beauty with words or pictures. Thank you all for making such wonderful work to share with others.

If you do not wish to do a post, no worries. We just wanted to take the time to recognize you all.

Thank you so much again, Melody. ☺

XO, Dorian Dean

Endless love, admiration, sorrow, worry, anxiety, fatigue… all rolled into one big ball that will always be in the shadow of my little girl.

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Sorry, my sweet little lady, but Mama took over your blog just this once since she doesn’t have one of her own yet. Since you are napping, I am sure you won’t mind, especially since it’s about your big sister Adalyn. After all, the sun rises and sets in you according to Addie.

I responded to a blog today about my daughter, who is a type 1 diabetic. It is diabetic blog week, and there is a prompt for each day. I responded to yesterday’s topic, “What Brings me Down?” because the blogger spoke about having diabetes since the age of 4, but seeing it in her small niece felt worse than her living with it herself. The blog link is here:

http://coriannh.wordpress.com/2014/05/15/what-brings-me-down-day-3-dblogweek/

She wanted to “explore the emotional side of living with, or caring for someone with, diabetes,” and she asked, “What things can make dealing with diabetes an emotional issue for you and / or your loved one, and how do you cope?” As her blog affected me emotionally since I know exactly what it feels like, I wrote her back. It’s waiting for approval, so I can’t reblog it so that others can see it. I wanted to share it because it was therapy for me to write. This is long already, sorry, I am longer winded than my baby girl, but if you are still there, please read on to the end… it’s worth it, I promise.

My 6 year old daughter was diagnosed with T1D a year and a half ago. It was Christmas day when I noticed that she was really grumpy and that she didn’t seem excited to get her gifts. I said to myself, “It’s nothing, she’s just having a moody day.”… even though her father is diabetic and my mind knew differently. Some days later I fell asleep with her, and my husband woke me up in the middle of the night when he got off from work. I was disoriented and sweaty. Well, I thought I was sweaty, and I wondered why. Then I felt the bed. The entire bed was soaked with urine from the middle to the bottom, it had soaked through the sheet and mattress cover. There was my beautiful daughter sleeping soundly, a girl who had never wet the bed after toilet training, not once. I cried. I cried because I knew. I couldn’t say that she was moody anymore.

Her blood sugars were tested a day and a half later, when everyone was ready to know… and they were in the 500s. Before I could process it, she was in the hospital and I was looking at her, so little, in a hospital bed with an IV in her arm looking washed out and weak. She was in good spirits until they came in to do her check or to give her insulin, and then she screamed. She fought. Before we left, I had to do her check, and thank God they let me use a regular pricker. I had to give her a shot. That was way worse, because all that I could hear while trying to put a needle in her leg for the first time was, “No Mommy, please no Mommy, please, please, Mommy, please, don’t Mommy…” in my ears ringing while trying to concentrate because I didn’t want to hurt her. No one wants to hurt their child.

She cried on and off for the first couple of months, but she adjusted. She started liking for others to see what she was doing. She still likes to explain her blood sugar checks.

My daughter is my hero. She is so brave and wonderful and beautiful. She will never again be that little girl who can just run and play and eat whatever she wants, though. As for me, there are some nights that she has been low and I can’t sleep after checking her sugars again twice to make sure they are okay and I still don’t believe that her numbers will stay okay, and every time that I see her run I worry on the inside because I have seen her sugars plummet, and I feel so sad when she lashes out because her sugars have had a roller coaster day– because it’s not her fault, and it’s not anyone’s fault… but it isn’t fair.

She has spoken in front of her school about the JDRF and raised money, but sometimes, when there are cookies out everywhere at Christmas and I know that her sugars are stable and I can only give her a little teeny bite so that she doesn’t feel like she is different, she still does, and she will say that she hates diabetes. Every diabetic does, but it is a large part of everyone with it. It is a large part of her that I embrace as I need to but inwardly despise. It took part of my daughter away… part of who she was became something else. It is beautiful as all of her is beautiful, but it is beautiful with restrictions. So that’s how it feels to be an outsider looking at your child with diabetes. It feels like endless love, admiration, sorrow, worry, anxiety, fatigue… all rolled into one big ball that will always be in the shadow of my little girl.

Some Little People are Big Beyond Their Years, and Braver, too.

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Today my big sister Addie was playing with me on the big bed that I love so much. I watch her all of the time and she loves to play with me. Mama says one day not too long from now I’ll be big like her. She’s 6 years old, so I don’t know about that since I haven’t even made one of those things called “years” yet, but Mama always tells me that time goes by fast. My days seem to stretch out so far that each day seems like it is really, really long, but my Mama says that’s because I haven’t seen too much time in my life yet and that it just keeps going faster and faster. My sister seems like she has seen a lot of life already, and my Mama says she has seen more life than many little girls her age because she has something called “juvenile diabetes.” She has a lot to do every day that Daddy says she has to do. She can’t just play and eat what she wants like my other bigger sister Lilli and my giant big brother Jonah.

I see her taking this blue stick thing and getting blood from her finger (Mama and Daddy help her with this but she can already do it herself) and putting it on this piece of thick paper into a machine that tells her numbers. The numbers, so Daddy tells me, says if she needs to eat if her numbers are low or if she needs this thing called “insulin” if her numbers are high. I don’t know what insulin is, but I know that she has a sharp little thing called a needle and that the medicine that keeps her okay has to be used with the needle. It seems like it would hurt, but my big sister never, ever cries and keeps running and playing after it’s done. She gets lots of those… Mama says at least 2 in the morning and then one after lunch and one after dinner, and that without that medicine she would get really, really sick pretty fast. She seems really brave to me to not cry and not get upset about having to do all of those things that hurt. My sister is so brave that she raised money for this group called the JDRF, which Daddy says means “Juvenile Diabetes Research Foundation.” She spoke in front of her entire school to let them know more about Diabetes, and she got this big bag of cool stuff that she let me play with. The one that I liked the best was this thing called a “Frisbee” which you throw and it flies in the air. I can’t throw anything big yet (although I can throw a pacifier really far when I’m mad), but one day Mama says that I will get to run and play outside too. I hope, though, that I don’t have to be quite as brave as my big sister is, and I hope that I don’t have to have medicine every day just to stay healthy. I do want to be big and strong like her though, and I really think that she might just be braver than even Mama and Daddy.